This section is for Trisomy X women or parents of Trisomy X women who are looking to talk to others of a similar variant.
I can only imagine what you went through and felt when you found out and received your diagnosis. I know how it felt to find out my XXY diagnosis, I would expect it to be somewhat similar. Here you have the opportunity to meet others virtually and to connect with those that have dealt directly with this situation.
Below are some links for more information for those who are affected by the Trisomy X variation, a friend or family member with this variant. If you have any recommendations for sites that have helped you, please feel free to let me know and I will be glad to add to the resources below.
If you have any questions for me, please e-mail Stefan.
TRISOMY-X INFORMATIVE WEBSITES &
SUPPORT AND INFORMATION LISTSERVS:
Trisomy-X mailing list and groups for support and information:
Websites specific Trisomy-X information:
- Triple X Syndrome
- Triple-X in Dutch
- University of Michigan Health System: Triple-X Syndrome
- Triple X Syndrome for Kids Health
- National Organization for Rare Disorders (NORD) for Trisomy X
- About Trisomy X
- Mayo Clinic – Triple X Syndrome
- Wikipedia – Triple X Syndrome