This section is for Trisomy X girls/women or families of Trisomy X women looking to talk to others of a similar variant.
I can only imagine what you went through and felt when you found out and received your diagnosis. I know how it felt to find out my XXY diagnosis, and I would expect it to be somewhat similar. You can meet others virtually and connect with those who have dealt directly with this situation.
Below are links for more information for those affected by the Trisomy X variation, a friend, or a family member with this variant. Please let me know if you have any recommendations for sites that have helped you, and I will gladly add to the resources below.
If you have any questions for me, please e-mail Stefan.
TRISOMY-X INFORMATIVE WEBSITES &
SUPPORT AND INFORMATION LISTSERVS:
Trisomy-X mailing list and groups for support and information:
Websites specific Trisomy-X information:
- Triple X Syndrome
- Triple-X in Dutch
- Triple X Syndrome for Kids Health
- National Organization for Rare Disorders (NORD) for Trisomy X
- About Trisomy X
- Mayo Clinic – Triple X Syndrome
- Wikipedia – Triple X Syndrome
