Those of us who learn about Klinefelter Syndrome at whatever age desperately need to find others that share our situation. When you have a rarer variant, you need to be able to seek validation from others. It is what we learn about ourselves and our similarities that can help all of us.
Below are some links for more information for those affected by the 49,XXXXY variant, a friend or family member with this rarer variant. If you have any recommendations for sites that have helped you, please feel free to let me know, and I will be glad to add to the resources below.
If you have any questions for me, please e-mail Stefan.
- Unique: 49XXXXY
- The Focus Foundation: 49XXXXY
- 49,XXXXY Syndrome
- Facebook Group for 49,XXXXY
- 49,XXXXY Syndrome
- Thesis – My Brother
