HOW ARE YOU?
MANAGE YOUR OWN
in 10 people will go to the hospital this year. Yet we receive no
training for how to be a patient or how to navigate the professional
world. The book How are You? Manage Your Own Medical Journey
the reader to be informed, proactive, and at peace with a serious
crisis. The fascinating role and complex issues of genetics, life
with a chronic illness and relationships are described in an honest,
account of one woman's journey with a rare genetic cancer syndrome, von
Hippel-Lindau disease. Readers will benefit from the practical
check lists that are provided at the end of each chapter.
need not merely survive, but can thrive in life after or with a serious
book, you may never use the question, 'How are you?' in the same casual
-- Joyce Graff, Co-Chair,
VHL Family Alliance
"This book is a
in the arena of self-help and patient advocacy. It is a wellness
handbook for every person."
Pacific Southwest Regional
"By sharing an
personal journey, the author offers information and inspiration that
no doubt decrease the suffering of other survivors."
-- Susan Leigh, R.N.,
National Coalition for Cancer
Orders should be accompanied with a check for $14.95 (book) + $2.05
($17 total!!) and made out to Patricia Foote. $3 from the sale of
each book ordered and seen from this website will go to Klinefelter
So if you are ordering this book, please mention where you saw the
Medical Journeys Network
P.O. Box 3612
San Luis Obispo, CA 93403
Please see the von
website for more information about this condition.
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Last updated on June 6, 2010