INFORMATION FOR THOSE
WITH A 49XXXXY VARIANT

NEWSLETTER, SUPPORT AND CONTACT INFORMATION:

49, XXXXY Syndrome Association's purpose is to interact with families and individuals dealing with Klinefelter Syndrome.  They offer parent-to-parent matching through their newsletter or by calling for more information. Their newsletter, The 49er Banner, is published three times a year. They have articles about the syndrome they will copy and send for a small fee.
 

Elise Watzka
49, XXXXY Syndrome Association
Palo Alto, California

Or Contact:

Linda Heir
The 49er Banner

A website specifically for those with 49XXXXY has been created.  To access this site, following this link.

New listserv now exists for parents who have a 49XXXXY son.
Follow this link: 49 XXXXY Listserv for Parents only


This section lists e-mail addresses and other contact information for those with 49XXXXY variant.

If you are affected by this variant or if your son is affected and you would like to be listed, e-mail Stefan.  Please let me know via e-mail if you come across any e-mail addresses that are no longer valid, so I may modify them accordingly.  Thanks so much.
 

Richie & Lori Ambrose
Son: Luke, born in 2003
49xxxxy

Annette Aubuchon
Fallbrook, CA
Son: Eric, born in 1968
49xxxxy

Estefania Azcona
Palma de Mallorca, Spain
Son: Javier, born 1/2000
49xxxxy

Pamela Barclay
Welling, Kent, England
Son: James, born 8/1986
49xxxxy

Frances and Norman Barnett
Barcaldine, Australia
Son: Grant, born 7/1966
49xxxxy

Marco Barra
Pozzuoli, Italy
Son: Italo, age 8
49xxxxy

Patty Bergen
Lake Havasu, AZ
Son: Brandon, born 10/1991
49xxxxy

Susan Brown
Essex, UK
Son: Jamie, age 17
49xxxxy

Elin and Kai Robert Bruun
Trondheim, Norway
Son: Stian, age 5
49xxxxy

Alan and Jennifer Cavarno
Portland, Oregon
Son: Christian, born 4/96
49xxxxy

Sonia and Gary Charles
Kelvedon, England
Son: Luke, born in 1996
49xxxxy

Alison and Simon Cook
Berkshire, UK
Son: Ben, born 2/2001
49xxxxy

Julie and Pete Corcoran
Dorset, England
Son: James, born in 1998
49xxxxy

Robert Cordes III
Ainsworth, Nebraska
born 1982, diagnosed 1982
49xxxxy
Bob and Lee Crihfield
Alliance, Ohio
Son: Noah, born 2003, diagnosed 2004
49xxxxy

Sean and Amy Croce
Circleville, Ohio
Son: Cameron, born in 2002
49xxxxy

Michael Dediashvili
Israel
Son: Natanel, born in 2001
49xxxxy

Ashley & Thomas DeMille
Nevada
Nephew: Matthew, born and diagnosed in 4/2002
49xxxxy

Peter and Sandy Drinkwater
Winter Harbor, Maine
Son: Adam, age 15
49xxxxy
Deborah and Al Farrah
Sterling Heights, Michigan
Son: Al, born 1990
49xxxxy

Charles and Rebecca George
Montana
Son: Gabriel, born and diagnosed 1/2002
49xxxxy

Jason and Kerrie Hardware
West Midlands, UK
Son: Gregory, born in 2000
49xxxxy

Julie Hawkins
Littleton, Colorado
Son: Nathan, born in 1987
49xxxxy

Per and Siv Henriksen
Stavanger, Norway
Son: Ole Andre, age 7
49xxxxy

Angela Hinsley
South Adelaide, Australia
Son: Matthew, born 7/1999
49xxxxy

Tami and Nick Johnson
Roseville, California
Son: Nick, born 1989
49xxxxy

Deb Kennedy
El Cajon, California
Son: Robby, born 1972
49xxxxy

Donna and Bruce King
Australia
Son: Scott, born & diagnosed 3/1994
49xxxxy

Keith and Debbie Kizer
Canal Winchester, Ohio
Son: Kendall, born in 1993
49xxxxy

Mike and Melissa Kyle
Williston, Florida
Son: Thomas, born in 2001
49xxxxy

Melody and Joe LaFleur
Kinder, Louisiana
Son: Joseph, 10 months
49xxxxy

Teresa Lewis
Edgewood, Maryland
Son: Tyree, born in 1989
49xxxxy

Rick and Connie Matthews
San Antonio Texas
Son: Ryan, age 7
49xxxxy

Theresa Means
Toledo, Ohio
Son: Raymond, born 6/1985
49xxxxy

Randy and Dee Meyers
Perrysburg, Ohio
Son: Joel, born 2000
49xxxxy

Jean-Pierre Mispelon
Villeneuve D'Ascq, France
Son: Quentin, born 1978
49xxxxy

Kellie and Tony Morris
Australia
Son: Lachlan, born 3/2001, diagnosed 9/2001
49xxxxy

Missy and Jimmy Neeley
Temple, Texas
Son: Austin, born in 1993
49xxxxy

Jack and Louise Peacock
Picture Butte, Alberta, Canada
Son: Austyn, age 4
49xxxxy

Kelly and Lyn Pilgrim
Mobile, Alabama
Son: born in 2000
49xxxxy

Matthew and Kelly Pirrottina
Geraldton, Australia
Son: Mav, born in 2003
49xxxxy

Erin Radecky
Tinley Park, Illinois
Son: Colin, born and diagnosed 1996
49xxxxy

Kevin and Yvonne Scanlan
Stafford, Virginia
Son:  Kyle, born 2000, diagnosed 2002
49xxxxy

Mike and Zena Shean
Rayleigh, Essex, England
Son: Joseph, born in 1994
49xxxxy
Angela Silvestro
Scotland, UK
Son: Marco, born in 1997
49xxxxy
Jan and Ron Simms
Worcestershire, England
Son: Jacob, born in 1996
49xxxxy
Stacey and Charlotte Smallwood
Arab, Alabama
Son: Jared, born in 2003, diagnosed in 2005
49xxxxy

Jeremy and Jan Speet
Melbourne, Australia
Son: Antony, born in 1994
49xxxxy

Laura Stover
Carmichael, California
Son: Jay, born in 1962, diagnosed in 1970
49xxxxy

Riitta Raatikainen and Pentti Vänskä
Kuopio, Finland
Son: Sampsa, born in 1996
49xxxxy

Elise Watzka
Palo Alto, California
Son: Joseph, born in 1982
49xxxxy

Drew and Lisa Williams
Baton Rouge, Louisiana
Son: Mason, born and diagnosed in 1999
49xxxxy

Angela and Adil Yavuz
Brentwood, Essex, England
Son: Semih, age 5, born in 1997
49xxxxy




 

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Last updated on April 22, 2008