NEWSLETTER, SUPPORT AND CONTACT INFORMATION:
49, XXXXY Syndrome Association's purpose is to interact with families and individuals dealing with Klinefelter Syndrome. They offer parent-to-parent matching through their newsletter or by calling for more information. Their newsletter, The 49er Banner, is published three times a year. They have articles about the syndrome they will copy and send for a small fee.Mike & Melissa Kyle
49, XXXXY Syndrome Association
If you are affected by this variant or if your son
is
affected and you would like to be listed, e-mail Stefan.
Please let me know via e-mail
if
you come across any e-mail addresses that are no longer valid, so I may
modify
them accordingly. Thanks so much.
Pamela Barclay |
Susan Brown Essex, UK Son: Jamie, age 17 49xxxxy |
Gary Charles Kelvedon, England Son: Luke, born in 1996 49xxxxy |
Alison and Simon Cook Berkshire, UK Son: Ben, born 2/2001 49xxxxy |
| Julie and Pete Corcoran Dorset, England Son: James, born in 1998 49xxxxy |
Jason and Kerrie Hardware West Midlands, UK Son: Gregory, born in 2000 49xxxxy |
Mike and Zena Shean Rayleigh, Essex, England Son: Joseph, born in 1994 49xxxxy |
Angela
Silvestro Scotland, UK Son: Marco, born in 1997 49xxxxy |
| Jan and Ron Simms Worcestershire, England Son: Jacob, born in 1996 49xxxxy |
Angela and Adil Yavuz Brentwood, Essex, England Son: Semih, age 5, born in 1997 49xxxxy |
Marina and Simon Milburn Flitwick, Bedfordshire, UK Son: James, born in 2005 49xxxxy |
| Frances and Norman Barnett Barcaldine, Australia Son: Grant, born 7/1966 49xxxxy |
Angela Hinsley South Adelaide, Australia Son: Matthew, born 7/1999 49xxxxy |
Donna and Bruce King Australia Son: Scott, born & diagnosed 3/1994 49xxxxy |
Kellie and Tony Morris |
| Matthew and Kelly Pirrottina Geraldton, Australia Son: Mav, born in 2003 49xxxxy |
Jeremy and Jan Speet Melbourne, Australia Son: Antony, born in 1994 49xxxxy |
| Estefania
Azcona Palma de Mallorca, Spain Son: Javier, born 1/2000 49xxxxy |
Marco
Barra Pozzuoli, Italy Son: Italo, age 8 49xxxxy |
Elin and Kai Robert Bruun Trondheim, Norway Son: Stian, age 5 49xxxxy |
Per and Siv Hendriksen |
| Jean-Pierre
Mispelon Villeneuve D'Ascq, France Son: Quentin, born 1978 49xxxxy |
Riitta Raatikainen and Pentti
Vänskä Kuopio, Finland Son: Sampsa, born in 1996 49xxxxy |
Susan and Jens Schulmann Germany Son: Bent, born 2005, diagnosed 2007 49xxxxy |
Alberto Pascual |
| Frederic and Simone Akarcay son Robin 49XXXXY Born & diagnosed 2006 Wuppertal, Germany |
Michel and Dianne Schroer son Dylan 49XXXXY Born & diagnosed 2010 Oploo, The Netherlands |
Frank and Carol Thyssen son 49XXXXY Born & diagnosed 1994 Antwerp, Belgium |
| Joe and Karen Cote British Columbia, Canada Son: Brandon, born 2001, diagnosed 2003 49xxxxy |
Ruth and Danny Jacquard Nova Scotia, Canada Son: Gregory, born 2003 49xxxxy |
Shauna Spilchuk (Mother)
|
Chris and Agnes Voisin |
| Michael Dediashvili Israel Son: Natanel, born in 2001 49xxxxy |
Bobby and Gladys B. Dimayuga Makati City, Metro Manila, Philippines Son: Ryan Angelo, born 2003 49xxxxy |
Arshad Rasheed Islamabad, Pakistan Son: Adil, diagnosed in 2011 49xxxxy |
|
John F. and Susan Caretti |
Peter and Sandy Drinkwater |
Kris and Kristal Falcone |
Teresa Lewis |
| Tom and Kerri Tower Marshfield, Massachusetts Son: Jake, born 1994 49xxxxy |
Art and Alice Condodina Broomall, Pennsylvania Son: Stephen, born 1968 49xxxxy |
Joe and Noreen LaFergola Kinnelon, New Jersey Son: Matthew, born 1999 49xxxxy |
Jennifer and Christopher Rose Manchester, New Hampshire Son: Sean, born and diagnosed in 2000 49xxxxy |
Richie & Lori Ambrose |
Michelle Greaud |
Mike and Melissa Kyle Williston, Florida Son: Thomas, born in 2001 49xxxxy |
Melody and Joe LaFleur |
| Rick and Connie Matthews San Antonio Texas Son: Ryan, age 7 49xxxxy |
Missy and Jimmy Neeley Temple, Texas Son: Austin, born in 1993 49xxxxy |
Kelly and Lyn Pilgrim Mobile, Alabama Son: born in 2000 49xxxxy |
Kevin and Yvonne Scanlan Stafford, Virginia Son: Kyle, born 2000, diagnosed 2002 49xxxxy |
| Stacey and Charlotte Smallwood Arab, Alabama Son: Jared, born in 2003, diagnosed in 2005 49xxxxy |
Steven and Colleen Jones Austin, Texas Son: Jack, born and diagnosed in 1999 49xxxxy |
Keith and Debbie Kizer Huntsville, Alabama Son: Kendall, born in 1993 49xxxxy |
Annette and Randy Whitmer |
| Paul and Pamela Merz Olive Branch, Mississippi Son: William, born in 2004 49xxxxy |
Robert Cordes III |
Bob and
Lee Crihfield |
Deborah
and Al Farrah Sterling Heights, Michigan Son: Al, born 1990 49xxxxy |
Sean and Amy Groce |
| Drew and Lisa Williams St. Louis, Missouri Son: Mason, born and diagnosed in 1999 49xxxxy |
Theresa Means Toledo, Ohio Son: Raymond, born 6/1985 49xxxxy |
Randy and Dee Meyers Perrysburg, Ohio Son: Joel, born 2000 49xxxxy |
Erin
Radecky Tinley Park, Illinois Son: Colin, born and diagnosed 1996 49xxxxy |
| Jenny and Scott Hansen Chesterton, Indiana Son: Luke, born and diagnosed in 2006 49xxxxy |
Stephanie Childs Zimmerman, Minnesota Son: Kasetin, born 2005, diagnosed 2006 49xxxxy |
Melissa LaLiberty Wisconsin Son: Brock, born and diagnosed in 2002 49xxxxy |
Jay and Lori Moore Redford, Michigan Son: Jacob, born and diagnosed in 1999 49xxxxy |
| Kelly and Doug Nurre Cincinnati, Ohio Son: Joshua, born and diagnosed in 2006 49xxxxy |
Jeremy Glunt and Renee Schlabach |
|
Annette Aubuchon |
Patty Bergen |
Alan and Jennifer Cavarno Portland, Oregon Son: Christian, born 4/96 49xxxxy |
Ashley & Thomas DeMille |
|
Guadalupe Gamboa |
Charles and Rebecca George |
Julie Hawkins |
Tami and Nick Johnson |
|
Deb Kennedy |
Laura Stover |
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Last updated on May 13, 2012