HIGHLIGHTS
OF THE
2008 NATIONAL
CONFERENCE
Conference
Objectives
- Explore the latest
research
and information
on XXY and variants
- Develop support systems
for
consumers
dealing with XXY
- Provide information on
obtaining access
to appropriate services
- Meet new friends and
visit
with old
friends
- Kick back and have fun!
Confirmed
Conference Presentors:
Luciano
Kolodny, M.D.
Minneapolis, MN
Endocrinologist in Private Practice
Specializes in Endocrinology and
andrology with a particular interest in patients with Klinefelter
syndrome and their families
"An Overview of Klinefelter Syndrome"
and "Possible Complications of Klinefelter Syndrome"
Jeannie
Visootsak, M.D., F.A.A.P.
Emory University
Atlanta, GA
Asst. Professor,
Dept. of Human Genetics
Board Certified in Pediatrics and
Developmental/Behavioral Pediatrics
Co-author of "Klinefelter Syndnrome
and Its Variants---An Update and Review for the Primary Pediatrician
"Anticipatory Guidance for an X-tra
Special Boy with Klinefelter Syndrome and Its Variants"
Daniel
Davis, Ph.D.
Columbus, OH
Psychologist and author whose
practice includes assessment and treatment of emotional and behavioral
problems in children and adolescents.
His books include, "Your Angry Child"
and "The Aggressive Adolescent".
"Understanding Behavior and Anger in
XXY"
Rhoshel
Lenroot, M.D.
Bethesda, MD
Child and Adolescent Psychiatrist
Clinical Research Fellow,
National Institute of Mental Health,
Bethesda, MD
Private Practice includes children
and adolescents
"Effects of Sex Chromosomes on Brain
Development in XXY Individuals"
Darius A.
Paduch, M.D., Ph.D.
New York, NY
Asst. Professor of Urology and
Reproductive Medicine,
Brady Urologic Health Center,
Cornell Institute for Reproductive
Medicine
New York, NY
Pioneered new molecular methods of
diagnosing men with Klinefelter syndrome, and other genetic causes of
male infertility and testosterone deficiency
"Developments in Hormonal
Manipulation during Childhood and Adolescence"
"Early Management of Klinefelter
Syndrome"
Nancy
Lazerson, M.A., CCC-SLP
Carlsbad, CA
Speech and Language Pathologist in
Private Practice who has published many articles on speech and language
disorders, including those common in Klinefelter syndrome
"Pragmatics--The Rules for
Appropriate Social Language
KYRIAKIE
SARAFOGLOU, M.D.
Asst. Professor
Dept. of Pediatrics
Division of Genetics and Metabolism
Univ. of Minnesota Children's Hospital
Fairview, MN
Dr. Kyriakie Sarafoglou is a
multi-specialist (Pediatric Endocrinology, Inborn Errors of Metabolism, and Human Genetics)
who is active in patient care, clinical
research, and education of medical students and pediatric
residents. She willl be
speaking about intersex and gender issues. AAKSIS has repeatedly been requested to provide a Speaker at its
National Conferences who is qualified to address this issue.
STEFAN
AND CHRISTINE SCHWARZ
Stefan, an XXY/XY mosaic is married to Christine, the mother of a 14
y.o. XXY son who was dxed in utero. Stefan and Chris met through their
participation at XXY National Conferences. Stefan is the owner of the
website <klinefeltersyndrome.org>.
Stefan, who is now 38 y.o., was dxed XXY/XY at age 25. Since his
diagnosis, Stefan has been an activist in raising awareness about
Klinefelter syndrome among educators and the general public.
Stefan and Chris will be speaking about "Navigating the Medical and
Educational Systems from a Parent's Perspective". Stefan and Chris feel
very strongly that this is a topic that needs to be presented by a
parent who has a special needs child.
Stefan and Chris also look forward to meeting, "in person", many of the
people they have met through their participation on the XXY information
and support e-mail lists.
***(As Additional Presenter's
Confirmations Are Received, Their Names Will Be Added to the above
List)***
Facilitated Discussion Groups:
- For Parents of Young XXY
Children
- For Parents of XXY
Pre-Adolescents
- For Parents of XXY Teens
- For Parents of XXY Variants
- For Parents of Adult XXYs
- For Dads (only) of XXY sons
- For Wives and Significant
Others of XXY Men
- For Heterosexual XXY adults
- For Gay and Bisexual XXY
Tentative
Conference Schedule:
Thursday,
June 26, 2008
5:00 P.M. - 7:00 P.M. Registration Desk open to
check-in and pick up materials
7:00 P.M. - 9:00 P.M. Informal "Let's Get Aquainted"
Session
Renew Friendships and Network with
Others in a Relaxed Atmosphere
_______________________________________________________________________________________
Friday,
June 27, 2008
7:30 A.M. - 8:15 A.M. Registration Continues
and Continental Breakfast Is Provided
8:15 A.M. - 8:30 A.M. Introductions and Opening
Remarks
8:30 A.M. - 12 Noon Morning Sessions,
including A.M. "break"
12 Noon - 1:15 P.M. Luncheon Is Provided
1:30 P.M. - 5:30 P.M. Afternoon Sessions, including
P.M. "break"
5:30 P.M. - 7:30 P.M. Dinner on your own with new
friends
7:30 P.M. - 9:00 P.M. Continue to Network with
Renewed Friendships and
New Friends in a Relaxed Atmosphere
_____________________________________________________________________________________
Saturday,
June 28, 2008
7:30 A.M. - 8:15 A.M. Registration
Continues (for those not yet registered) and Continental Breakfast Is
Provided
8:15 A.M. - 8:30 A.M. Announcements and
Opening Remarks
8:30 A.M. -12 Noon Morning
Sessions, including A.M. "break"
12 Noon - 1:15 P.M. Luncheon
Provided
1:30 P.M. - 3:30 P.M. Afternoon Sessions,
including P.M. "break"
3:30 P.M. - 5:00 P.M. "Ask the Doctors + All
Other 'Experts' Who Presented Panel"
5:00 P.M. - 5:30 P.M. Closing Remarks and
Conference Adjournment
Please continue to watch
site for updates
Return to Last
Page
Return to Main Page
Last update April 14, 2008.